Propofol has a totally new meaning!

So three weeks ago Shiloh had an MRI and he was sedated for the procedure. He did perfect with it, IV went in easily, he went under sedation easily, came out of sedation easily and had a nice smooth rest of the day. However, Monday was a different story! When the anesthiologist was going over everything with us, we were nodding our heads - remembering every line since we just heard it...and then she said we'll be using 'propofol'. Ha! (In case you've been in a hole it is what supposedly killed Michael) She paused for our mouths to drop and then reassured us that it's the sedation they use all the time. She said she never had so many questions about it then in the last couple weeks. We all had a nice little chuckle.

That was where the fun ended! Whew, what a day what a day! They had to try 6 different times to put an IV in Shiloh! At one point I picked him up off the bed and told them to back off and give him a minute. He calmed down and they went back to it. They finally got the IV in - seriously after over an hour. They took him back for sedation and the MRI. He came back more groggy than last time, I asked how he did under sedation and she said 'great.' Um okay, thanks. He woke up within 20 minutes, really groggy, but took a sippy cup just fine. We took him home, he drank half a sippy cup then laid down for a nap. He woke up around 430pm and within 20 minutes had worked himself into quite a crying fit. He could not calm down - no matter what we put in front of his face. Then he started taking deep short breaths in between cries - like he was hyperventilating!!! AGH!!!! We called our doctor - as short breaths were on the list to call doctor for (we also had a list of when we should call ER, and when to call 911, ugh). By the time the doctor called back he had calmed down and was just chill. She said as long as he's able to calm down and he's aware, alert and happy (intermittant) he would be fine. To monitor and call again if he worsens. The rest of the night we held him as he did not want to be put down at all. Finally around 10:30 he was asleep enough that we were able to lay him down next to us. Within 10 minutes he was awake and crying and breathing badly again. But within that 10 minutes his fever spiked to 102.3!!! We called the advice nurse at the children's hospital and started packing up for the ER. She called us back as we were about to put the kids in the car. She ran through a list of questions and determined he was okay, needed some tylenol and if he didn't calm down within the hour to bring him in. Well he did calm down, and is did perfectly fine today. Still al ittle fever, but otherwise happy.

I was just positive this propofol did this to him! Ha. Come to find out propofol was what they used on him his last MRI, where he did perfectly fine. Goes to show you how influencial TMZ is these days!!!! Okay, stop laughing!

And GREAT news!!!! MRI came back normal. No problems with his spinal cord!!!! Yay!!!!!!!

And did I mention we had our three year old with us through this whole ordeal?!?! Ha. We've just learned it's easier to just take her wherever we go - and she's so compassionate to Shiloh, they are really connected that I think she even helps keep him calm. What a great little girl. We are so lucky for these two babies in our lives.

We are starting to become comfortable in our new skin as parents of a deaf child. Actually speaking the words to someone "He's deaf" doesn't quite sting as hard or choke us up as much as a few months ago.


We are learning the best places to go to answer our questions, the best sites for researching medical devices, the most heart warming and inspiring blogs of families going through the same thing and also that everything we need is held within the arms of this family.